1 - "Just try to relax; stress makes it worse." While stress can indeed exacerbate symptoms, telling someone to "relax" is often unhelpful and could increase their frustration or guilt. Instead, say: "I know this can be stressful. Is there anything I can do to help make your day easier?" This approach offers actionable support without adding pressure. 2 - "You need to stay strong for your family." This can place an undue burden on them to suppress their emotions and condition, adding to their stress. Instead, say: "It's okay to feel however you're feeling, and it's also okay to ask for help." This gives them permission for vulnerability and self-care, which is key for their emotional well-being. 3 - "You just need to stay positive." While a positive attitude can help, this can make it seem like it's the person's responsibility to manage a progressive illness. Instead, say: "I'm here for you, no matter what." This offers support without pressuring them to put on a happy face.
Don't say things like, "You're getting worse," or "You can't do that anymore." It's better to focus on support and understanding. Say something like, "I'm here for you, let's do this together." And don't make it about pushing them to accept it quickly, that only adds stress. You can say, "Maybe we can try something that makes things easier today." It's really about making sure they don't feel isolated or like a burden, so try to keep it positive and be patient, because it's about helping them feel like they still matter.
As a plastic surgeon, I have worked with many Parkinson's patients to help improve their quality of life. Do not tell them they appear frail or weak. Parkinson's does not define a person. Focus instead on their abilities and strengths. For example, ask about their hobbies, social life, or travel plans. Show interest in who they are beyond their diagnosis. Do not make light of their tremors or movement difficulties. Do offer a steady arm for support if walking together. Make eye contact, speak clearly and directly to them. For example, say "Please let me know if there's any way I can assist you." rather than "Do you need help with that?" which can imply they cannot do something independenrly. Do not suggest risky procedures or make unrealistic promises. Discuss realistic goals and options to manage symptoms. Provide resources and education on the latest research and treatments. For example, say "There are several promising new therapies being studied. Let's review options that may suit your needs."