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Recognized Rare Disease Leaders 2025

In the complex world of rare diseases, access to expert knowledge is crucial for advancing research, treatment, and patient care. Featured.com's directory of rare disease specialists brings together leading researchers, clinicians, and patient advocates who are at the forefront of understanding and combating these uncommon conditions. These experts have been featured in prestigious medical journals and mainstream media, offering invaluable insights on genetic disorders, orphan drugs, and innovative therapies. For publishers and journalists, our directory provides a direct line to authoritative sources for in-depth articles and breaking news on rare disease topics. For specialists in the field, it's an opportunity to amplify your voice and contribute to wider public understanding. Whether you're seeking expert commentary or looking to share your expertise, our rare disease directory connects you with the right resources. Discover our network of rare disease experts and take the next step in elevating your content or expanding your professional reach.

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Quidest Sheriff

Founder & CEO at Doctors Under the Radar

Amharic
Analytical Skills
Bls
+2 more

Dr. Kiki is the Physicians' Mental Health Advocacy Doc and lead strategist, consultant, and international public speaker. Dr. Kiki is working to change the system governing physicians and their mental health needs by increasing transparency, acknowledgment, accountability through policy development, leadership participation and physician engagement. She aims to shift the paradigm that drives systemic progress to develop transformational workplace changes, with mental health at the core.Dr. Kiki has dedicated herself to HEALING THE HEALERS!

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Dr. Debra Muth

N.D, Author & Founder at Serenity Health Care Center

Acupuncture
Allergy
Alternative Medicine
+2 more

I am a national speaker, practitioner, business coach, and writer in the field of integrative medicine. Author of "Dark Side of Injury." I am interested in collaborating with integrative providers dedicated to practicing the highest quality and most innovative treatments in functional & integrative medicine. I have created Serenity Health Care Center Waukesha, Wisconsin, which has some of the best providers in the country in their fields and is the largest practice of its kind in the Midwest. In addition, I want to replicate my practice nationally and internationally with the help of outstanding practitioners, so I have created the Functional Medicine Business Institute that offers business courses and coaching. My aim is to help more practices start and scale because patients everywhere need access to solutions to their chronic hard to treat health challenges. I am an advocate for women's health issues and an expert in the field of bioidentical hormone therapy for both men and women. I have worked with people who suffer from thyroid dysfunction, adrenal fatigue, menopause, infertility, various endocrine-related diseases that involve hormonal imbalance. I also have a personal interest in treating Lyme disease and preventing the spread of this disease to our future generations.

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Dr Andrew Greenland

Specialist in Integrative Functional Medicine at Greenland Medical

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ZF

Zeba Faroqui M.D.

Rheumatologist

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Chad Ramos

Chief Executive Officer at Privado Health

A/b Testing
Advertising
Advertising Management
+2 more

Most ASCs are grossly underperforming and are not using technology and data to their fullest potential. They rely on outdated processes and antiquated technology. With a looming recession and physician and nurse shortages increasing, underperforming ASCs will be squeezed even more. By applying best practices at every stage of the process, we eliminate waste and unlock profitability. We have proprietary technology, a unique framework for ASC management and a focus on leveling up staff at our facilities. When you partner with Privado Health, you are maximizing the profitability of every case you bring to your facility. Find out more at: https://privadohealth.com/

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Daniel Teper

Founder and CEO at NAYA Therapeutics Inc.

Biopharmaceuticals
Biotechnology
Business Development
+2 more

NAYA Biosciences is building a group of companies leveraging the next generation of biotechnologies to increase patient access to life-transforming treatments in oncology, fertility,and auto-immune diseases . Our unique capabilities provide a synergistic platform for the accelerated clinical development and commercialization of these breakthrough therapies.Daniel Teper is a serial entrepreneur and a corporate strategist who has founded, led, and advised several biopharma companies both in the US and internationally. Daniel has a proven ability to identify and execute strategic partnerships, mergers and acquisitions, and financing deals that create value for all stakeholders. Daniel holds a PharmD degree from Université Paris-Saclay, an MBA from INSEAD, and completed executive programs at Wharton and MIT.

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Andrea Wilson Woods

President & Founder at Blue Faery: The Adrienne Wilson Liver Cancer Association

Advocacy
Blogging
Books
+2 more

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Mathea Ford

Registered Dietitian Nutritionist at Renal Diet HQ

Budgets
Coaching
Customer Satisfaction
+2 more

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Nilanjana Bose

Rheumatologist at Lonestar Rheumatology

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John Ujwok

Epidemiologist at CDC Foundation

Capacity Building
Community Development
Community Outreach
+2 more

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Amy Yang

Clinical Geneticist at Oregon Health and Science University

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Daniel Cham

Physician at NexGen Innovative Solution LLC

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Showing 12 of 12 experts

How does Featured.com facilitate connections between rare disease experts and publishers?

Featured.com streamlines the process of connecting rare disease experts with publishers through our user-friendly platform. Experts create detailed profiles highlighting their specific areas of expertise, research focus, and previous media experience. Publishers can then search our directory using keywords related to their article topics, allowing them to find the most relevant experts quickly. Our system enables efficient communication between parties, ensuring timely responses for urgent media requests while respecting the busy schedules of rare disease specialists.

What kind of rare disease topics do publishers typically seek expert commentary on?

Publishers often seek expert commentary on a wide range of rare disease topics, including breakthrough treatments, genetic research findings, patient advocacy initiatives, and policy changes affecting rare disease communities. They may request insights on diagnostic challenges, emerging clinical trials, quality of life issues for patients, and the economic impact of rare diseases. Experts might also be asked to comment on global rare disease awareness campaigns, such as Rare Disease Day, or to explain complex scientific concepts to a general audience.

How can rare disease experts benefit from joining Featured.com?

Rare disease experts can significantly enhance their professional visibility and impact by joining Featured.com. Our platform offers opportunities to share your specialized knowledge with top-tier publications, potentially reaching millions of readers. This exposure can lead to new research collaborations, speaking engagements, and recognition as a thought leader in your field. Additionally, being featured in reputable media outlets can bolster your credibility and support career advancement in the rare disease community.

What types of rare disease experts can I find on Featured.com?

Featured.com offers access to a diverse range of rare disease experts, including geneticists, immunologists, neurologists, and specialized researchers. Our directory encompasses professionals with expertise in ultra-rare conditions, orphan diseases, and emerging therapies. Whether you're seeking insights on specific syndromes or broader rare disease topics, our platform connects you with knowledgeable specialists across various medical and scientific disciplines.

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